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Old 01-23-2008   #10 (permalink)
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Re: The best way to research Morgellons

Quote:
Originally Posted by Pyrotex View Post
When a new disease crops up, the family doctors are stymied, as well may be the specialists in the big city medical centers. They report their mystery cases to something like the National Disease and Contagion Center (I made that up) who collect statistics. As soon as a pattern appears--dozens of people with a new set of unexplained symptoms (like morgellons), then eventually a research team looks into it. And voila! Lymes Disease gets its due recognition and treatments begin to appear.
Lymes is a good example.

"Because the legal standard of care is defined by the consensus of treating physicians (rather than published guidelines), two standards of care for Lyme disease are now recognized in the U.S., a situation with significant legal implications for both patients and clinicians."

"The 2006 IDSA guidelines have come under fire from a variety of corners. The International Lyme and Associated Diseases Society (ILADS), a professional medical society, formally requested retraction of the IDSA guidelines, arguing that the authors ignored all published data that conflicted with their opinions, and refused input from physicians and patients with differing views."

Lyme disease controversy - Wikipedia, the free encyclopedia

More on Lymes:
Lyme disease - Wikipedia, the free encyclopedia

One thing for sure. You dont want to be the first one at your doctors office with something new or rare or controversial.
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